Alpheus Media produced this short documentary about the young adult cancer experience with our friends at the Lance Armstrong Foundation (LIVESTRONG). We traveled across the U.S. to connect with college students and young adults, as we explored how they deal with the specific issues they face when diagnosed with cancer.


By telling their stories, the Lance Armstrong Foundation hopes to raise awareness and address the specific burden of young adult cancer survivors across the world. To learn more or to get involved, visit livestrong.org.”

(Source: youtube.com)

Bit of an update

Haven’t really updated this in a while as there hasn’t been much cancer related stuff going on with me anymore and I don’t really want this blog to turn into just me spamming about my daily life and interests or whatever. I’m not that interesting nor is my daily life. Anyway, on with the update.

I saw my general practitioner last week, which was the first time I’d seen her since December 2010 when I went to her about the lump on my testicle. She referred me to a urologist and from there I just met with my oncologist/surgeon. I went to talk to her about several issues I’ve been having for a while now, like: fast heart rate which I can often feel pounding in my chest, the tremor in my hands, sleep problems, excessive fatigue, back/neck pain, stomach aches, and just generally feeling shitty. 

Her and the psychiatrist I see think a lot of it could be tied to depression and anxiety, both of which I’ve had issues with for the better part of a decade now. So I switched up my antidepressant medication again to see if things improve overall. I’m sure some of it can be at least somewhat attributed to that but I don’t think it’s 100% that. The anxiety has definitely gotten worse since having cancer and it’s difficult to talk to people about that since nobody I know has had cancer. I will admit as well that I’ve become somewhat of a hypochondriac. Sometimes I look around online finding conditions that I’m halfway convinced I have or looking up symptoms of other cancers and seeing if I have any. 

I’ve pretty much convinced myself I have what’s called “essential tremor” in my hands as I’ve actually had this slight tremor for as long as I can remember, though it got noticeably worse during chemo. It’s not a big deal I just don’t want it to get worse. I’m also suspicious that I might have some disorder akin to POTS (postural orthostatic tachycardia syndrome) which is basically where your heart rate goes too high when standing and results in overall inefficiency in blood delivery…it’s kind of rare though so doctors want to rule most things out before looking into that. 

Oh and while at the doctor they drew some blood to check my testosterone and thyroid levels, though I haven’t gotten the results back yet. The nurse remarked while trying to stick me that I had “the veins of an old man” and that I was “too young for veins like this”, which is of course likely due to the chemotherapy which I had via IV this time last year.

It has been almost exactly one year since I finished chemotherapy. July 25th 2011 was my last day of chemo infusion. It’s weird to think that it’s already been a year.  In some ways it seems like a lifetime ago yet then again it’s something I never can forget about. It’s really strange looking back on pictures like the ones I just posted and sorting them all chronologically relative to the cancer. Like “oh this picture was just before I was diagnosed, this one just after my surgery, this one just before chemo” etc…

I think I’m starting to ramble so I’ll stop for now and if anything else seems worth mentioning I’ll do that later.

Found some old pictures from surgery/chemo times that I never did post on here.  Figured I should since this blog is mostly about the cancer that I had. This is pretty much all the pictures of me from that time that exist…In retrospect I wish I’d documented it a bit more - at least a picture showing just how thin I got during chemo, like down to 115-120lbs. Can kinda see it in that one pic where I’m standing but not too well.

Also you can see the incision from the orchiectomy (right testicle removal) in the top right picture. Don’t think I ever showed that on here before. 

It’s weird to learn that people diagnosed with the same cancer as me around the same time are now dead…

I frequent a testicular cancer support forum (http://www.tc-cancer.com/forum/) and recently I saw that a man who was diagnosed in February of 2011 has passed away. I was diagnosed with a similar cancer pathology in January of that same year…Sometimes I feel like the cancer wasn’t even real, as mine was cured so (relatively) easily. But then I see things like this where people with a spouse and children are dying within months of being diagnosed. It’s just very strange.

The man I’m talking about was Clint Aaron Miller. You can see his obituary here. May he rest in peace.

Also reading about people who, again, had similar types of cancer are having recurrences as much as 10 years post diagnosis is frightening.

Fucking finally.

Your Brain After Chemo

http://www.amazon.com/Your-Brain-After-Chemo-Practical/dp/B0080R6RP2/ref=sr_1_5?ie=UTF8&qid=1336764055&sr=8-5

This is a pretty neat book for anyone who’s had chemo.

“Getting two or three CT scans of the abdomen exposes you to the same amount of radiation as people who lived near the atomic blast that ravaged Hiroshima in 1945”

http://www.reuters.com/article/2011/01/05/us-patients-underestimate-ct-scan-radiat-idUSTRE7044RO20110105

Great…I only get one every 3 months. I get chest/abdomen/pelvis with and without contrast, so it likes a double dose too. Just great.

My surgery was 1 year ago today. Neato.

My surgery was 1 year ago today. Neato.

I saw a girl wearing one of these yesterday and at first I didn’t even know it was supposed to be for testicular cancer awareness because it seems so stupid to me. The vast majority of men with testicular cancer don’t have balls, they have a ball or none (or perhaps a prosthetic or two). The idea that you’re going to “save a testicle” is even stupider. Almost never is a testicle “saved”, as soon as cancer is detected in the testicle, it is immediately removed. Often the cancer isn’t even detected until it has been removed. When I saw a girl wearing one of these I didn’t think “Oh, hey, she must support testicular cancer survivors like myself”. All it did was make me feel self conscious about having one testicle. It just seems like a gimmick to me. Again makes you wonder if these “cancer awareness” campaigns aren’t just for-profit marketing schemes. I think people would only buy and wear these because it seems funny due to the whole “I love balls!” thing. If you really want to help cancer donate straight to a cancer research fund like the Cancer Research Institute.